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The McPherson Family

Casey McPherson was the lead musician for a Texas band called Alpha-Rev, but he is now using his talent to raise awareness for his daughter Rose, whose rare neurological disease, HNRNPH2, if left untreated, will become increasingly debilitating. Wearing multiple hats now working in the scientific community to bring genetic treatments to children across all rare diseases, Casey is in the process of launching a biotech lab, and an N-of-1 Fund to help drive rare disease treatments forward.

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